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Thanks, Boz. You have always been ...

2008-04-27 @ 07:32:13 pm
by Andre


Happy to be there with you ...

2008-04-27 @ 07:05:37 pm
by Boz


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May/14/2008 

What are Congenital Gender Variations ?


Some of us hear the above title and immediately think this is only for Intersex and “other”  conditions.


Not so. Let’s break the wording down.

“Congenital” basically means of what we were born with. When I looked up congenital in the Word documents’ thesaurus, they describe it as present at birth, innate, inborn, inherited and hereditary. There is all kinds of Congenital variations including Congenital Heart palpitations, congenital blood disease, congenital diabetes, and so forth. These are examples of something that runs in a family. Then there are the non-heredity conditions such as Klinefelter’s syndrome, limb variations, Turner’s Syndrome and personality traits for an example.

Gender Variations  - most think of it as anything outside of the binary xx and xy but in fact it is all the genetic chromosomes. Think of it, xx is a variation as is xxy, xo, xxyy, xxxy, xyy, xy and so on. Even xxy is not in the binary but perhaps a combination of xy and xx or a gender variation in itself, the arguments go on forever. With the chromosome out of the ordinary binary system, we get those who have combined genders (not unheard of in the realm of xxy) or a predominant gender. 

There is nothing to fear because in essence, this is the way the societies were built from. Some keep their gender a secret, some reveal only a certain part and some go all out and expose themselves to the menace of the world and society regardless. It’s all good.

In ancient times to present, those with two genders were revelled by mysticism and treated special or burned at the stake. Indian legend talks about a “two spirit” and were sought after to become their spiritual leaders in the forms of medicine men or women. There is a definite advantage to being a two spirit, they can understand not only the two distinct genders, but see the world though a combined thought which encompasses not only the male and female, but an extra understanding. The world can certainly use more of those as each gender have blinders to certain things.

So really, we are all a Congenital Gender variation, even those who are born xy male and born xx female. 

I think it’s time we stop assuming what relatively new things are and start looking into what their function(s) are without frightful assumptions that only serve to push people away without reason.
Andre · No views · 0 comments
Categories: Thoughts

May/09/2008 

About me


This will basically be a short intro as I am working on something a bit more comprehensive.

My name is Andre and presently I am 46 years of age. I was diagnosed at age 22 with Klinefelter's syndrome and was prescribed way too much (T)estosterone. My journey from there was a roller coaster of good high points in my life and some very low points. I was an angry person with everything to prove, always looking behind my back as to who would want something of me.

I am not that frightened anymore and I had changed my ways a while back when I came onto an XXY site that made me take a good hard look at myself. I decided then to be positive without my eyes closed.

Three to fours years later, I had opened my own sites and keep on bringing the message that everyone is important to someone, including themselves because that is what I had concluded with myself.

I am an open person who loves to hear for others for a good conversation. There is one thing I cannot stand is inebriated people trying to talk to me. I don't even play any game that suits their fancy as the game would not be a fair one. I love a challenge but not under the influence of anything. I did too much of that and had developed a distaste for it.

So, aside from that, I love talking to all kinds of people. I welcome any questions about anything including Klinefelter's and Intersex.

More about those later.

Andre

Andre · No views · 0 comments
Categories: A bit about me

Apr/27/2008 

Torn


I would like to make my bio but I have done that so many times and in different places that I have lost the eagerness of doing so again. Instead, I would like to talk about the last couple of days. Some would see it as strife of another sort, I prefer to see all of as a learning experience and something thought provoking.

We have a neighbor here in our complex that is divorced from his wife. She lives not too far from here. Jointly, they created a wonderful son. This boy comes over here a lot as he and my daughter are good, no, best friends. There is sadness in his eyes most times, like a pain or a heart wrench. I don't think even he is aware of that. I know where it comes from.

His father loves him very much and it shows at times. He showers this boy with gifts that either was wished for or was thought of. His mother does the same in not knowing her you would think that she is struggling for his love as his father is. In the way his father talks about her makes it seem that she is certifiable.

The distinct problem is that the boy cannot take whatever gifts given to the other parents place. He goes one week to his father and the other to his mother. I often wonder if he has a home to call his own. In fact, I wonder if he has anything to call his own. His father buys him clothes in which the boy feels uncomfortable in and cannot take it with him to his mother's. This situation is sad; he has nothing to call his own...nothing. He struggles with his self worth and often tells us of things no child must go through or think. My wife and I feel for him but we are powerless...perhaps. We know that whatever changes will come from him, an inner strength called upon. We are worried about him constantly and wonder if he will ever resolve this tearing between his mother and father, both vying for his attention not realizing that they are effectively tearing him apart.

His father does not see past his rage for the woman he regrets of marrying, I wonder if he sees his son as an object to pull and push to get the father's own means. He denies the son whatever the son would like, what he is good at, all because his mother was the one that paid for the activity.

This torments me to see that, I can't even imagine the boy's thoughts.

Recently, my wife and I bought him a bear from Build a Bear Workshop. He chose it and made it and gave it life. He loves that bear from the first time he held it and he couldn't believe how much he could love something. I had tears flowing as I saw myself in this boy hugging that bear and loving it, never letting it go. We told him that this was his bear and no one could take it away, he can bring it wherever he goes...it's his.

When it came time to go to his mother's again, his father withheld the bear as he did with everything else. The boy was silent and said nothing. As my daughter was with him at the mother's house, we got a call of what had transpired. My wife and I finished our business in a neighboring town and quickly went over to the father's apartment to ask for the bear. The father was not happy to comply with my wife pleading for the bear. We explained to him that the bear belonged to the boy and that we had bought it for him. Fits of caged rage was visible as mutterings of him being manipulated rang throughout his apartment as he fetched the bear and threw it at us. No matter, said my wife, we have the bear.

We brought the bear to the boy at his mother's house and the two cried, the bear and he in their reunion. The boy never let go and neither did the bear. The quickly fell asleep with each other.

The father would not talk to us after that, this is day two. I am very angry at him for he does not see what he is doing to his son, the demands he is putting on him. In effect, he is losing him every time they are together on his weeks with him.

My rage, anger and feeling over this situation pales to what the boy must be feeling. I wish I could fix this but I have to solve it within myself that this cannot be fixed with our influence, it must come with the boy.

When will he resolve this and how will this be played? Will he be ready and how will he be affected?

Disturbingly, I don't know these answers.

Andre · 1 view · 0 comments
Categories: Thoughts

Apr/24/2008 

Intersexions Cafe - helping with a purpose.


www.Intersexions.org


When Curtis Hinkle, President of the Organisation Internationale Intersexe (OII), had come to me after seeing GendersInX to create a site for Intersex exclusively, I was really excited about it. Not only was I contributing to a great cause, I was getting more experience in making a site and handling all it’s functions.

The idea was to make a site for the French speaking population which primarily existed in France. So a member of the Google groups, that the OII run, decided to start if off by opening a forum from forumotions, a server that I had never considered. After handing this to me, I started on the graphics with the aid of a dear friend of mine, another xxy who had talent and the tools for such a task. Curtis asked to have this site in the setting of a Café. This site was called Café Intersexe.

This was a challenge for me as the entire site was French. Although I do speak and read French in my secular work, this was something a little different as it was Parisian French, a whole different ball game than from the Quebec French. But things went along smoothly and in no time was it open for conversations while the graphics and technical details were finalised.


As I was excited about this site, I had asked Curtis whether he would like the same in the English board. The answer was yes and so I started on it. This one is called Intersexions Café as I thought everyone from around the world will be convening on this one site. The graphical themes were set accordingly. Again my dear friend had helped me on some things that were out of my realm or reach even.


You know that famous shoe that drops ? It was in a form of a cement shoe in the Intersexe Café where members of that forum were quite disrespectful towards other members and the atmosphere quickly became poison. No matter how hard Curtis and I tried, the people there were insistent that prejudice was to be a part of their posts. It soon became apparent that this site would not work and so Curtis and I made steps in closing this site down. We handed it over to the trouble maker in the group and he shut it down not 5 days later due to the overwhelming responsibility that suddenly fell on his shoulders.

In a discussion, Curtis and I immediately stepped up Intersexions Café to include the most common languages such as French, Spanish and German all along that same theme. The Head Admin there, Gina, made sure that none of this nonsense in the other Café were present in the Intersexions site and it is to this day.

Presently, we are enjoying the different thoughts and conversations from all corners of the earth and I must say that site is doing very well. Curtis is ever thoughtful to give us news on what is happening around the world where Intersex is concerned and many others give their reports in a well. So we are well informed of the goings on Internationally.


It’s nice to see that we have an impact everywhere in the world, truly a feeling of belonging is to be had in
www.Intersexions.org .

Andre · 1 view · 0 comments
Categories: Intersexions Cafe

Apr/24/2008 

How ParentsInX came about


www.ParentsInX.org


When GendersInX was approximately a year old under the new server, I had started to think about creating a new site just for parents of children with a Congenital Gender Variation. This would include parents who are or their children who are of 5 Alpha Reductase, Congenital Adrenal Hyperplasia, Androgen Insensitivity Syndrome, Klinefelter’s Syndrome and Turner’s Syndrome. 

The parents forum wasn’t seeing too much traffic in GIX and I thought that perhaps the cause was that parents would like a little privacy. In writing this concern in GendersInX, a member there who is a mother of a Turner’s Syndrome child spoke up and suggested that a new site just for parents was the way to go. I offered her moderatorship on the site and she accepted. So here I went with a new project to be excited about. 

Mamaniq and I decided that the theme of the site should be centered around the home as this is where we raise our young’uns most.  I had set this up so that the resource people in GendersInX would also have the same job function in ParentsInX (PIX for short). This way if a parent had any questions, then they would get the information first hand from a person who is of that condition. Mamaniq has good first hand experience in her child’s condition and I am a Klinefelter’s person who is daddy to a daughter (can you tell how proud I am of that ?).

To our great surprise, we had a donation given to us for this project. This gave us a great boost. Although PIX is a free forum, some things paid for are domain names, no ads, memory storage and other features that make our forums wonderfully functional. Well, things are picking up and unlike most sites, it is my feeling that parents do not want to share their story until they are assured that a site is safe and sound.  This is something that most parent sites are not assured of.

To date, we have some mothers coming on PIX and we are starting to see more conversations. I look forward to others coming on and voicing their concerns, thoughts and anecdotes. The site is definitely safe and all who enter go through a short screening process in order to be assured that the new poster is not a spammer. We are always open to suggestions, should it be noted that a forum would be apt for a discussion. 

www.ParentsInX.org exists to encourage and support all the members with a little fun mixed in.


Andre · No views · 0 comments
Categories: ParentsInX

Apr/24/2008 

History of GendersInX

www.GendersInX.org 


GendersInX  started when I was neck deep into moderation of another site that dealt with Klinefelter’s and all aspects of it. In amongst the many posters, a woman who had Turner’s Syndrome came on to find out what Klinefelter’s was all about. I was amazed on how much we had in common as much as I was interested on our differences in our two syndromes. I wanted to explore that however it would not be appropriate to discuss Turner’s in a Klinefelter’s forum. 

I scoured the internet to find a suitable forum server that will do the trick. Through my inexperience with this I found an opportunity in one of the free forums. A comment was made that any free site would not make it anywhere. That was the last straw in giving me the push to make this site as I really thought that this person was wrong in down playing anyone’s effort. Finding a name for the site that will compare different conditions with each other in looking for similarities, I had to find an appropriate name that would encompass them all. After a time, I found the common factor in all of our conditions is the X Chromosome. Some have more than one, some less  and some inexistent. I knew that not everyone saw themselves as male and female but still acknowledged that they had a gender or were genderless so I called the site Genders In X. In this new site, I put this in as a .com as I didn’t know any different then.

The site started slowly as any site does and I included the Turner’s syndrome person I had met on the other site as my moderator. As I had many a friend on the other xxy site, they supported me and tried to help as best they could. To this day this effort is much appreciated. This will be said from time to tine as grass roots are always remembered.

As GendersInX (GIX for short) was slowly taking off, my moderatorship  was in question from the other site as I was seen as making a competitive site and it was feared that I would take posters from that site to make mine. This was never the intention but I could see that this would be a thorn to explain it, so I stepped down vowing that I will prove that what I say is true. Much to the Admin’s credit, this was retracted and all was good. In fact, he and I are good friends and we talk from time to time always supporting each other. As much as this situation could be viewed as a negative, I saw it as a positive as it gave me a bigger push to concentrate on my task at hand. I am still a member of that earlier site and I post once in a while when I find some interesting information the members there could appreciate. I owe a lot to www.XXYTalk.com  as it opened my eyes to parts of myself that were mere frustrations before I came onto the site. 

In the time that I posted much on XXYTalk.com, I met a person there that had posted subjects particularly on intersex subjects. As GIX was getting to the point that Intersex was going to be a good part of that site, I approached Curtis Hinkle to take a gander at GendersInX at that point. He was impressed that a site addressed the commonality of different conditions leaning towards Intersex without any influence of any other organisation. As I found out later, Curtis was/is the President of the Organisation of Intersex International (OII) and GIX was introduced to his members. That gave GIX the necessary push to expand it’s horizons. I had altered some of the wording to accommodate the many different people that would come on the site. Curtis then made me a part of his organisation to which I am there still today. The title that Curtis created for me was apt to my mission that I was trying to accomplish. More on that in my biography.

Curtis had expressed a desire to have a site that addressed Intersex only and so I began to make a site for him through another server that I wasn’t initially aware of. I made plenty of mistakes and I learned from every single one of them. This site is called Intersexions Café and later on it’s domain name became www.Intersexions.org. More on that story in it’s own title.

That was a good experience and it gave me ideas on how I was going to step up GIX as I wasn’t satisfied over the security features (or the lack of it) and other features that direly needed upgrading. I changed to the forumotion server and restarted GendersInX encouraging the members to change over. I lost a few then but I gained a few more. Certainly my subjects on 5 Alpha Reductase, Congenital Adrenal Hyperplasia, Androgen Insensitive Syndrome, Klinefelter’s Syndrome and Turner’s Syndrome were getting a fair chance of becoming more available to anyone that would like to learn of them through the people that have that condition.

From that time on, we had seen some bumps and bruises not unlike any site starting up and the members in GIX certainly supported the site and are still there today. This I say with pride because I appreciate everyone’s efforts on GIX. Really, I am the Admin there but they are the ones that make the site the encouraging and supportive site it is now. For the future, I would like to add more genetic sexual conditions so that we all can learn from the people involved and get together online to discuss whatever suits our fancy. I will probably change some features and the look a little but I am happy with the marble layout. My co-Admin just rolls up here eyes when I mention that I will change this and that. I think variety is the spice of life and so I implement that into GendersInX.org as much as possible .

As mentioned earlier, we have resource people who address any and all questions concerning their conditions. To date we have 5 excluding myself. Some members shared an interest in trying to encourage some of the other members who have not posted yet and from that one member, the group of 4 is now called the Peer Support group. I think it’s important that we all share in encouraging and supporting each other as we will not get that from the world as it is. Indeed getting hammered constantly would discourage anyone. I find my refuge in GIX when the negative world starts to make little sense to me. Once in a while I let loose by writing what frustrates me or brings me down and I am always encouraged again to continue what I set out to do. 

Supporting and encouraging, this is what www.GendersInX.org  is all about,.
Andre · 11 views · 2 comments
Categories: GendersInX